Family Resilience Technologies: Designing Collaborative Technologies for Caregiving Coordination in the Children’s Hospital

When a child is admitted to the hospital with a critical illness, their family must adapt and manage care and stress. HCI and Computer-Supported Cooperative Work (CSCW) technologies have shown the potential for collaborative technologies to support and augment care collaboration between patients and caregivers. However, less is known about the potential for collaborative technologies to augment family caregiving circles experiences, stressors, and adaptation practices, especially during long hospitalization stays. In this presentation, I will describe a set of studies that helped us better understand the challenges in care coordination and guided the design of a care coordinationn application. I explain how we used the Family Adaptive Systems framework from the family therapy fields as a lens to characterize the challenges and practices of families with a hospitalized child. I characterize caregiving practices and challenges under the the four adaptive systems from the theory: Emotion system, Control system, Meaning, and Maintenance system. Then, we focus on suggesting opportunities for designing future collaborative technology to augment collaborative caregiving and enhance family resilience.